What is Prader Willi-Syndrome?
Friends with PWS in the New England area gather for the first annual PWSA New England walkathon!
PWS is a non-inherited genetic disorder which is most often associated with a random deletion of the 15th chromosome. It is estimated that PWS occurs in 1 in 10,000 births. It affects both sexes and is unrelated to race. The cause is, as yet, unknown.
PWS typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity. The food compulsion makes constant supervision necessary. Average IQ is circa 70, but even those with normal IQs almost all have cognitive deficits and require special education. Social and motor deficits also exist. At birth the infant typically has low birth weight for gestation, hypotonia (weak muscles), and difficulty sucking due to the hypotonia (“failure to thrive”). The second stage (“thriving too well”), with onset between the ages of two and five throughout lifetime, usually is characterized by increased appetite, weight control issues, and motor development delays along with often severe behavior problems and medical issues.
Our 4th Annual PWSA New England Walkathon!
Once again it is time for our Annual walk and silent auction! Many items have been donated including but not limited to Disney Park Hopper passes, Red Sox tickets, vacations, restaurants and many other items located throughout New England. This year we will be holding raffles to win a Kindle Fire. There will be 3 seperate raffles for a Kindle Fire. To have a chance to win, all you need to do is raise $500 or more to be entered into the raffles. Your total Donation needs to $500 or more on the day of the walk. Please click on the following link for more detailed information on the walk and silent auction items.
http://www.firstgiving.com/pwsaNewEngland
Please come and support the PWS community.
Saturday June 9th 2012, 9-12pm
259 Massapoag Avenue
North Easton, MA 02356
Borderland State Park