What is Prader Willi-Syndrome?


Friends with PWS in the New England area gather for the first annual PWSA New England walkathon!

PWS is a non-inherited genetic disorder which is most often associated with a random deletion of the 15th chromosome. It is estimated that PWS occurs in 1 in 10,000 births. It affects both sexes and is unrelated to race. The cause is, as yet, unknown.

PWS typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity. The food compulsion makes constant supervision necessary. Average IQ is circa 70, but even those with normal IQs almost all have cognitive deficits and require special education. Social and motor deficits also exist. At birth the infant typically has low birth weight for gestation, hypotonia (weak muscles), and difficulty sucking due to the hypotonia (“failure to thrive”). The second stage (“thriving too well”), with onset between the ages of two and five throughout lifetime, usually is characterized by increased appetite, weight control issues, and motor development delays along with often severe behavior problems and medical issues.


PWSA New England will once again be hosting its annual Walk and Silent Auction

Click Here to register for the walk and start Fundraising.

For every $500 raised, your name will be entered into a raffle to win an iPAD! We will be raffling off 4 different iPADS, so be sure to get fundraising.


We will once again be hosting the silent auction this day. We are still collecting auction items but some items include: BOSE Sounddock; DISNEY Park Hopper Pass; 2 sets of Red Sox tickets; Patriot tickets; ZAC BROWN AT FENWAY TICKETS; many restaurant donations and hotel stays around New England and autographed items from New England sports teams. And SO much more. We have something for everyone, in every price range! So please come on down to Borderland. Bidding starts at 9 am and the last bid will be at 12 noon.
Check back here or the Firstgiving site above for an updated list at the end of May.


Saturday, June 14
259 Massapoag Avenue
North Easton, MA 02356